Tag: Share Your Story

  • My Life Is Not My Own

    My Life Is Not My Own By: Michell Freeman   My name is Michell Freeman, I am from a small town in Bennettsville, South Carolina and this is my story. On November 4, 2013 I was in an automobile accident that involved a fatality. I was hit by a car that had ran a red light.…

  • Share Your Story: Marge Sudbay

    My daughter has had this horrific disease for approximately 20 yrs. She suffered for years as her work comp doctors refused to consider RSD. Consequently, no early treatment!  She has severe pain from noises. Her “pain Dr.” told her to wear ear plugs!.This idiot hasn’t read Oaklander’s study showing damaged nerve endings. He also states Ketamine…

  • Share Your Story: Ann Lavendar

    I was diagnosed with RSD in January of 2002.  Since that time I’ve had more than 40 procedures, ranging from stellate blocks (both through my throat and the more dangerous procedure through my back and around my lungs), RFTC’s (radio frequency thermocoagulation blocks), exploratory surgery resulting in a vein wrap around a trapped nerve which…

  • Respond to CDC proposed guidelines

    Here is your chance to voice your opinion on how the PROPOSED CDC Guidelines may affect you as a pain patient who needs proper and timely access to care. (this link is the place to submit your comments), there is also a link on the CDC page that brings you to the guidelines, as well it…

  • Share Your Story: Emily Ullrich

    In hindsight, my chronic pain began at around eleven years old, when I started menstruating. My periods were so extremely painful that I would literally pass out from the pain. My mother had painful periods, and so my agony was chalked up to genes, and as I got older, I learned a few tricks to…

  • Raising Awareness, Building Community by Stephanie Christianson

    Raising Awareness, Building Community Stephanie Christianson The Juvenile Diabetes Research Foundation (JDRF) hosted a series of two 5k challenges here in Atlanta, Georgia. My family and I participated in last year’s 5K held on the 19th at Verizon Amphitheater in Alpharetta, GA, my hometown. We participated in this event because of my younger brothers who…

  • Twitter Chat on #Mindfulness

    On July 29, 2015 the Power of Pain Foundation hosted a twitter chat on #Mindfulness with Dr Lynn Webster, M.D.and POPF President, Barby Ingle. Here is the highlights from the chat. Power of Pain Foundation – Today we will be led by guest host @LynnRWebsterMD, talking all things #mindfulness & #PAIN, To start things off, @LynnRWebsterMD could…

  • Share Your Story: Stephanie Lynn; Arachnoiditis

    Share Your Story: Stephanie Lynn Christianson; Arachnoiditis One day in May 2006, out of nowhere I was suddenly overtaken by pain in my knee. I saw the orthopedist, whom at the time was on the fence about proceeding with a surgical intervention. I had the surgery, but the pain never really went away. I left…

  • Sheila Kim Purcell, shares her story about living with Multiple Sclerosis

    Sheila Kim Purcell #ShareYourStory #MS August 20,1999 was one of the most life altering days of my life. The first was the day I found out, I was going to have a baby. This day was not so joyous as it was the day I found out I had MS. I was a single parent…

  • Medical Drug Delivery Pump; Tenah’s Story

    Hello my name is Tenah. I have a Medical Drug Delivery Pump. My MD and I both agreed that this would be the best way to deliver medication for my pain. I had been taking Kaden for the pain before my pump. I did not like the way the pain medicine felt. I wanted a…

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