Tag: rsd

  • Share Your Story: Marge Sudbay

    My daughter has had this horrific disease for approximately 20 yrs. She suffered for years as her work comp doctors refused to consider RSD. Consequently, no early treatment!  She has severe pain from noises. Her “pain Dr.” told her to wear ear plugs!.This idiot hasn’t read Oaklander’s study showing damaged nerve endings. He also states Ketamine…

  • Share Your Story; Jan Marie Moore

    After 15 years of suffering (docs cut a nerve in my c-spine during neck surgery), I have been diagnosed with CRPS. My spine is on fire 247. My body has atrophied terribly. I can barely walk or use my arms. Doc put me on Nucynta and a muscle relaxer. Its only helping a little. I’m…

  • Share Your Story: Ann Lavendar

    I was diagnosed with RSD in January of 2002.  Since that time I’ve had more than 40 procedures, ranging from stellate blocks (both through my throat and the more dangerous procedure through my back and around my lungs), RFTC’s (radio frequency thermocoagulation blocks), exploratory surgery resulting in a vein wrap around a trapped nerve which…

  • Share Your Story: Emily Ullrich

    In hindsight, my chronic pain began at around eleven years old, when I started menstruating. My periods were so extremely painful that I would literally pass out from the pain. My mother had painful periods, and so my agony was chalked up to genes, and as I got older, I learned a few tricks to…

  • Protecting Prescription Medications

    Protecting Prescription Medications by Barby Ingle, President Power of Pain Foundation • Do not request early refills or increase your dose of medication without discussing it with your provider • Keep medications out of reach of children and pets, and use child proof caps • Keep prescription medications away from teenagers and visiting guests (friends…

  • The Power of Pain Foundation Article for PAINWEEK Journal

    The Power of Pain Foundation Article for PAINWEEK Journal 2014 PAINWeek Journal (PWJ) Vol 2, Q 2 issue By Barby Ingle The mission of the Power of Pain Foundation (POPF) is to promote public and professional awareness of neuropathy conditions while educating those affected by the neuropathy pain, as well as their families, friends, and…

  • Invisible Diseases and Insurance Companies: Challenging and Preventing Insurance Denials

    By Kantor & Kantor, LLP Invisible diseases are often complex, mysterious, and complicated. Because of the ambiguous nature of these conditions, finding a diagnosis (or more than one diagnosis) can prove to be a difficult and prolonged process. Patients are faced with two challenges: (1) the internal suffering and symptoms they experience may not be…

  • Autoimmunity against the b2 adrenergic receptor and muscarinic-2 receptor in complex regional pain syndrome

    [vc_row][vc_column][vc_column_text] The link is to the article Autoimmunity against the b2 adrenergic receptor and muscarinic-2 receptor in complex regional pain syndrome – CRPSautoimmunity [/vc_column_text][/vc_column][/vc_row]

  • Anesthesia vs Tranquilizers

    Anesthesia vs Tranquilizers Many people confuse Anesthesia and Tranquilizers so I thought I would research the topic and I learned a few things. Most of my information is from an anesthesiologist and a veterinary assistant.  Anesthesia Anesthesia is a state of mindlessness (apathy, loss of sensation, medically induced insensitivity to pain) Anesthesia is much more…

  • IV Ketamine Info

    Ketamine Infusion Information Information gathered by Barby Ingle, Power of Pain Foundation and based on her treatments as well as many other patients.  Pre K-Infusion Testing Laboratory Cardiac Psychological evaluation Even with NO significant adverse events, administering doctors have been extremely cautious in screening patients with concurrent medical problems Most common reason a patient is…

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