Power of Pain Foundation (POPF) provides community based support services that address needs of chronic pain patients with Neuropathy conditions such as RSD/CRPS, Post Cancer Pain, Fibromyalgia, Diabetic Neuropathy, and many more. Accordingly, beneficiaries include patients who are economically and socially affected by these invisible diseases. Whether you have Neuropathy pain or a caregiver, family member, or friend of someone diagnosed, we’ll help you face the challenges and life changes of chronic nerve pain, head on.
POPF Holiday Mail program
Support a Family Fighting Pain This Holiday Season by Sending Words of Good Cheer!
This year the Power of Pain Foundation is starting a new tradition… a Christmas card for the special pain patient or caregiver in your life. Do you know someone who feels like they are alone; well we want to give them a little joy and cheer.
So, send us their address and we will get the joy of delivering holiday greetings to patients around the world. The cards and personal messages from you will be sent out on December 15th so they arrive just in time for Christmas. Thanks for providing a welcome “touch of love” for our pain community members during the holiday season.
Each year we will also collect cards between October and early December and then distribute them through the mail, at hospitals, and in other pain management locations.
There are several ways to be part of the Holiday Mail program for the pain community. In addition to sending cards on your own, you can let POPF know who you believe needs a card and special message this year!
*Send your cards for distribution to:
Power of Pain Foundation
38556 N. Dave Street
San Tan Valley, AZ 85140
Or email info@powerofpai
SHOW YOUR SUPPORT
Makena was a normal, active, energetic 16 year old girl. She loved shopping, hanging out with friends, and art. She was a successful student with plans of becoming a labor and delivery nurse. She was actively planning her future and living life to the fullest. In February Makena’s world began to change. She started to suffer from a, rare and extremely painful, neurological disorder called Complex Regional Pain Syndrome or Reflex Sympathetic Dystrophy. The pain associated with this disease is ranked higher than child birth and amputation of a digit on the McGills Pain Index. Within a few months, Makena lost all function of her hands and legs. She is in continual pain and can’t even tolerate a gentle touch or a hug. Visit www.helpmakena.com to make a donation.
In 2011 after a terrible car accident while 8 months pregnant and a series of failed spine surgeries, Tiffany was diagnosed with Type II CRPS. Complex Regional Pain Syndrome (CRPS), also known as Reflex Sympathetic Dystrophy, is a chronic neurological syndrome characterized by severe burning pain, pathological changes in bone, and skin, excessive sweating, tissue swelling, and extreme sensitivity to touch. Click here to visit Tiffany Turner’s donation page.
After years of mystery illnesses dating back to early childhood, multiple trips to various hospitals over the past 6-7 years, a fierce “head pressure” affliction in May 2012 that forced her into the hospital, and 15 additional unproductive visits with the “best doctors” in Los Angeles and Chicago, it was determined that Erica has late stage Chronic Lyme Disease with multiple co-infections. Yes, Lyme disease from a tick or other infection carrying parasite. We don’t know where or when she was bitten or even really how she acquired the disease but suspect she has had it for a very long time. On top of the Lyme infection, she has co-infections Babesia and Bartonella, which are two additional parasites attacking her immune system and vital organs. Read more Click here to visit Eica’s donation page.
Chronic pain is pain that has lasted for a long time. In medicine, the distinction between acute and chronic pain has traditionally been determined by an arbitrary interval of time since onset; the two most commonly used markers being 3 months and 6 months since onset, though some theorists and researchers have placed the transition from acute to chronic pain at 12 months. Others apply acute to pain that lasts less than 30 days, chronic to pain of more than six months duration, and acute pain that lasts from one to six months. A popular alternative definition of chronic pain, involving no arbitrarily fixed duration is “pain that extends beyond the expected period of healing”.
Vince’s passion is to understand the human brain. He has spent the past three decades focusing on brain research. He is the founding Director of the newly built Clinical Neuroscience Center in the Department of Psychology at the University of New Mexico (psych.unm.edu), and is an Editor for NeuroImage, the most highly cited journal in the field of neuroimaging. Vince’s most important occupation is caring for his children. His 11 year old son was diagnosed with a pain syndrome two years ago. This started him on a journey to find and validate new methods to alleviate suffering in people with brain and mental illnesses. He hopes to help begin a “small” revolution in medicine, finding more practical methods of diagnosis and treatment that are also safer, cheaper and more effective than what is currently available.
Don’t smoke. It can worsen chronic pain.
Learn deep breathing or meditation to help with chronic pain.
Reduce stress in your life. Stress intensifies chronic pain.
Boost chronic pain relief with the natural endorphins from exercise.
Cut back on alcohol, which can worsen sleep problems.
Join a support group. Meet others living with chronic pain.
Track your pain level and activities every day.
Learn biofeedback to decrease pain severity.
Eat a healthy diet if you’re living with chronic pain.
Find ways to distract yourself from pain so you enjoy life more.
Pain management is an ongoing process, not just a one-time concern. Finding the right combination of therapies may take time, but often makes the critical difference in your care.
Your pain management team will work with you to map out a treatment plan tailored to your specific needs. Successful pain management aims to:
- Lessen the pain
- Improve functioning
- Enhance your quality of life
These are considered the hallmarks of pain management and “best practices.”In some cases, pain is best managed using a combination of treatments. This is referred to as a “multi-modality” approach. For example, your healthcare provider may prescribe a medication along with activities to reduce stress (e.g., yoga, deep-breathing exercises). To improve daily functioning, specific therapies may be suggested to increase muscle strength and flexibility, enhance sleep and reduce fatigue, and assist you in performing usual activities and work related tasks.
The RSD Quilt is dedicated to ALL patients and loved ones everywhere who has ever worked to spread awareness or to raise money for RSD. Doctors and Nurses, the support group leaders; all the fighters out there; this is for everyone who ever raised a hand against the monster called RSD. Most of all this is dedicated to all of those we have lost along the way who fought until they could fight no more.
Watch The Newest Quilt Come Together 1 Square At A Time
All squares sent in to be dedicated to the Quilt Project will be added to the slideshow for everybody to view. To all that participate in the quilt project, our goal is to make this a part of yours as much as it is a part of ours and we thank you all.
Visit www.rsdcrps.org or click on the banner to learn more.
Great Nonprofits is a place to find trustworthy nonprofits. Their mission is to inspire and inform donors and volunteers, enable nonprofits to show their impact, and promote greater feedback and transparency. Please take a moment and leave a review. Your input is valuable to our cause. With your help we can continue our stride towards excellence. Thank You in advance and may you have many pain free days.
Because of the amazing reviews we got from all of you, we’ve won a 2012 Top-Rated Award from GreatNonprofits. Check out our profile! We’ll be highlighted on the 2012 Top-Rated Page. The Huffington Post, TakePart and Parade Magazine will be referring their readers to check out Top-Rated Nonprofits in November. We also received this award in 2011. Congrats to everyone who helps make Power of Pain Foundation a success and have helped us grow over the past 6 years.
Joan Rivers to Headline Comic Pain Relief 2013
Opening performance by Ace Young and Diana DeGarmo of American Idol fame and now cohost of Planet 360o.
Chandler Center for the Arts
250 N Arizona Ave, Chandler, AZ 85225
Friday - 7:00pm
November 15, 2013
1st Annual NERVEmber RSD Balloon Launch
Spreading awareness about RSD for others to discover at Discovery Park, AZ. With hopes that everyone in our lives will discover RSD in one way or the other. Attached to the balloons is the RSD BREAK CARD explaining a little about this condition. Thank you everyone for attending and those that are with us online, you can see more photos HERE.