Power of Pain Foundation recognizes the value of every person who makes up the chronic pain community. We are guided by our commitment to excellence, leadership and patient empowerment. We demonstrate this by:
* Providing educational resources for physical and emotional care * Advancing excellence in pain awareness of the over 150 conditions involving chronic pain and what patients are faced with on a daily basis * Strengthening our relationships with hospitals, pain clinics, pharmaceuticals, support groups and our chronic pain community * Demonstrating social responsibility through the use of our pain resources. The commitment of volunteers, physicians, community partners and friends to the Power of Pain mission, permits us to maintain a quality presence and tradition of caring, which are the hallmarks of the Power of Pain Foundation.
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POWER OF PAIN FOUNDATION SPOTLIGHTS
Power of Pain Foundation host the OFFICIAL NERVEmber project events each year. Since its inception, tens of thousands of nerve pain patients and organizations have signed on to help promote NERVEmber.
Did you know the color orange is the international color for chronic pain awareness. In over 150 conditions that do have nerve pain as a symptom, RSD is one of the most painful. Yet this condition is misunderstood, mistreated and often misdiagnosed.
#NERVEmber is International Nerve Pain Awareness Month (including RSD, CRPS, Diabetes, and more). Each day during the month of NERVEmber the @PowerofPain Foundation will present an awareness task that we can all perform!
This year we are also giving away over $2,500 in prizes available for everyone who registers to participate and use the hashtags, complete tasks, host or attend an event. The more you participate in OFFICIAL #NERVEmber events, the more chances you have to win! Check out all events going on in NERVEmber Event Calendar.
You can bring awareness to conditions like #RSD #CRPS #Diabetes by posting everyday in #NERVEmber with @powerofpain #PaintTheWorldOrange. Using these tags will earn you chances to win some great prizes!
Thank you for visiting NERVEmber.org and don’t forget to visit NERVEmber™ on FACEBOOK.
Power Skate Against Pain
is a 46 mile solo roller-blade project by Melissa Valliere for #NERVEmber and #Sinceriously, taking place on November 7, 2015 at Neuse River Trail in Raleigh, NC. NERVEmber brings awareness to the 150+ conditions with nerve pain as a symptom. November is internationally recognized as nerve pain awareness month and Orange is worn to show support.
Melissa has lived with the neuro-autoimmune condition Complex Regional Pain Syndrome since 2006, after her 5th shoulder surgery. Over the years she has tried numerous treatments with no real success. CRPS is hard to treat because it affects everyone differently and no one treatment works for all. Melissa found the most success with Calmare therapy.
Dr. Demerjian currently treats adolescents and adults with tmj/mpd-mayofascial pain disorders using custom fabricated orthotic appliances, myriad of therapeutic techniques and orthodontics. His sleep-disordered breathing treatments utilize using multiple dental sleep appliances and therapeutic techniques. He also treats patients suffering from neurologic disorders with dental management of the disorder through his TMJ treatments.
See videos and learn about alternative treatment options available to you with a consultation from Dr. Demerjian
E-mail: email@example.com Burbank Office: (818) 238 9865 Glendora Office: (626) 852 1865 www.tmjconnection.com
Stephanie Lynn Christianson; Arachnoiditis
One day in May 2006, out of nowhere I was suddenly overtaken by pain in my knee. I saw the orthopedist, whom at the time was on the fence about proceeding with a surgical intervention. I had the surgery, but the pain never really went away. I left for my freshman year at Vanderbilt University still feeling slightly off. I had been there a month when the pain began to spread gradually to encompass my entire left leg. I was unable to leave my dorm room and climb the stairs and getting food was an absolute challenge. I was 18 years old at that time and terrified.
The third doctor I saw trying to address what was going on finally realized I had Chronic Regional Pain Syndrome (CRPS). The only thing I can remember from that day was the effect it had on my mother who fully understood what this could mean for my quality of life. Needless to say, she was devastated. At that point in time, I was an ostrich with my head in the sand. I found it painful at first to even think about what was happening to my leg. My family worked relentlessly and we traveled the United States looking for a proper intervention and treatment for CRPS.
Avril Lavigne Was ‘Bedridden’ Following Battle With Lyme Disease
In a new interview with People, Avril Lavigne has revealed a nearly year-long battle with Lyme disease. Lavigne’s announcement follows a viral Twitter direct message between the singer and a fan last December, with Lavigne revealing that she had been ill, but not opening up about the extent of her sickness. In the new interview, Lavigne details how months of feeling terrible reached its peak during her 30th birthday trip to Las Vegas in October. “I could barely eat, and when we went to the pool, I had to leave and go lie in bed,” said the Canadian singer. Though she had seen doctors throughout the year for her mysterious illness, she was not diagnosed with the infectious disease until after her birthday. She attributes her severe case to a tick bite from last spring. “I had no idea a bug bite could do this,” she said. “I was bedridden for five months.” Lavigne has remained in her Ontario home where family and husband Chad Kroeger of Nickelback have taken care of her. “I felt like I couldn’t breathe, I couldn’t talk and I couldn’t move,” she said about the severity of her condition. “I thought I was dying.” Lavigne believes she is “80 percent better” and is planning on jumping back into her career. In February, she released the video for her single “Give What You Like” off 2013’s Avril Lavigne. Later in April, she’ll unveil “Fly,” a promotional song for the 2015 Special Olympics. “This was a wake-up call,” said Lavigne. “I really just want to enjoy life from here on out.” Learn more about Lyme Disease here
Pain management is an ongoing process, not just a one-time concern. Finding the right combination of therapies may take time, but often makes the critical difference in your care.
Your pain management team will work with you to map out a treatment plan tailored to your specific needs. Successful pain management aims to:
Lessen the pain Improve functioning Enhance your quality of life
These are considered the hallmarks of pain management and “best practices.”In some cases, pain is best managed using a combination of treatments. This is referred to as a “multi-modality” approach. For example, your healthcare provider may prescribe a medication along with activities to reduce stress (e.g., yoga, deep-breathing exercises). To improve daily functioning, specific therapies may be suggested to increase muscle strength and flexibility, enhance sleep and reduce fatigue, and assist you in performing usual activities and work related tasks.
Aunt Barby’s Invisible, Endless Owie
Sometimes, explaining chronic pain to children is difficult, especially when the cause of the pain isn’t clearly visible.
This hardcover book helps kids understand that people with chronic pain conditions often need special care, but that doesn’t mean they don’t like to have a good time. It talks about ‘Aunt Barby’ coming for a visit and how to get the house ready for a special kind of guest.
POWER OF PAIN FOUNDATION SPOTLIGHTED VIDEOS
The AVACEN 100 is a patented and FDA cleared Class II medical device that uses cutting edge technology developed by AVACEN Medical. It incorporates heat therapy and negative pressure to increase local circulation and infuse heat into a unique vascular network, located in the palm of the hand. Raising the blood temperature at this “single point treatment” (the palm) increases blood temperature throughout the body naturally via the circulatory system. This can benefit the entire body. Click here to read more about Avacen
Non-Invasive – Drug-Free – Convenient Easy to Use – Ideal for Home and Clinic – Single Point Treatment
Vince’s passion is to understand the human brain. He has spent the past three decades focusing on brain research. He is the founding Director of the newly built Clinical Neuroscience Center in the Department of Psychology at the University of New Mexico (psych.unm.edu), and is an Editor for NeuroImage, the most highly cited journal in the field of neuroimaging. Vince’s most important occupation is caring for his children. His 11 year old son was diagnosed with a pain syndrome two years ago. This started him on a journey to find and validate new methods to alleviate suffering in people with brain and mental illnesses. He hopes to help begin a “small” revolution in medicine, finding more practical methods of diagnosis and treatment that are also safer, cheaper and more effective than what is currently available.
Chronic pain is pain that has lasted for a long time. In medicine, the distinction between acute and chronic pain has traditionally been determined by an arbitrary interval of time since onset; the two most commonly used markers being 3 months and 6 months since onset, though some theorists and researchers have placed the transition from acute to chronic pain at 12 months. Others apply acute to pain that lasts less than 30 days, chronic to pain of more than six months duration, and acute pain that lasts from one to six months. A popular alternative definition of chronic pain, involving no arbitrarily fixed duration is “pain that extends beyond the expected period of healing”.
Neuroscientist and inventor Christopher deCharms demos an amazing new way to use fMRI to show brain activity while it is happening — emotion, body movement, pain. (In other words, you can literally see how you feel.) The applications for real-time fMRIs start with chronic pain control and range into the realm of science fiction, but this technology is very real.
Special thanks to Executive Board Member Twinkle VanFleet. Twinkle has dedicated her time to making this video bilingual. Making a difference together helps us all.
The RSD Quilt is dedicated to ALL patients and loved ones everywhere who has ever worked to spread awareness or to raise money for RSD. Doctors and Nurses, the support group leaders; all the fighters out there; this is for everyone who ever raised a hand against the monster called RSD. Most of all this is dedicated to all of those we have lost along the way who fought until they could fight no more. Watch The Newest Quilt Come Together 1 Square At A Time
Because of the amazing reviews we got from all of you, we’ve won another Top-Rated Award from GreatNonprofits. Check out our profile! We’ll be highlighted on the Top-Rated Page. The Huffington Post, TakePart and Parade Magazine will be referring their readers to check out Top-Rated Nonprofits in November. We also received this award in 2010, 2011, 2012, 2013,2014 and now 2015. Congrats to everyone who helps make Power of Pain Foundation a success and have helped us grow over the past 7 years.