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Power of Pain Foundation (POPF) provides community based support services that address needs of chronic pain patients with Neuropathy conditions such as RSD/CRPS, Post Cancer Pain, Fibromyalgia, Diabetic Neuropathy, and many more. Accordingly, beneficiaries include patients who are economically and socially affected by these invisible diseases. Whether you have Neuropathy pain or a caregiver, family member, or friend of someone diagnosed, we’ll help you face the challenges and life changes of chronic nerve pain, head on.

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News Letter

Over 150 conditions have neuropathy as a symptom. Pain can affect emotional outlook, your ability to concentrate, your energy level and sense of self. Click on the conditions button to find out more. Subscribe to our news letter.

The Power of Pain Foundation presents the Melanie McDowell Pain Awareness and Advocacy Award annually. The recipient is a pain patient or provider who has demonstrated outstanding commitment to assisting and advocating for people with neuropathy pain conditions.  Nominations are solicited in the pain community for people who are making a significant contribution within the field of research, education, awareness, or patient assistance. See past winners here.

PILL MAN“As a patient advocate and also as one who battles with an arduous health condition (Complex Regional Pain Syndrome or Reflex Sympathetic Dystrophy), I have been involved in several conversations regarding the need for a  “magical pill” that eliminates all suffering

 – J. S. Wilkes, POPF Executive Board Member and affliction. After much deliberation, I am confident that I have found such a pill. I present this P.I.L.L. philosophy only as a Polite Invitation for “Living” Longer. CRPS/RSD has a nasty reputation of taking a person’s life away but leaving them still breathing. By sharing this philosophy, I hope that those suffering can also apply this in their own lives, become empowered and take back control. While it may not solve everything, discovering your P.I.L.L. will help you heal and live a more fulfilling and functional lifestyle.”

Jason Wilkes

RSD Quilt Banner

The RSD Quilt is dedicated to ALL patients and loved ones everywhere who has ever worked to spread awareness or to raise money for RSD. Doctors and Nurses, the support group leaders; all the fighters out there; this is for everyone who ever raised a hand against the monster called RSD. Most of all this is dedicated to all of those we have lost along the way who fought until they could fight no more.

Watch The Newest Quilt Come Together 1 Square At A Time

All squares sent in to be dedicated to the Quilt Project will be added to the slideshow for everybody to view. To all that participate in the quilt project, our goal is to make this a part of yours as much as it is a part of ours and we thank you all.

RSD Quilt Square

Visit www.rsdcrps.org or click on the banner to learn more.

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Prior Authorization

The Power of Pain Foundation works to develop a standardized prior authorization form for prescription drugs, not to exceed two pages in length, and to make the form electronically available and transmissible in every state. The bill would also allow for the electronic notification of the approval or denial of the authorization request.

The Power of Pain Foundation, strongly supports legislation which will streamline the prior authorization process, benefiting physicians (and their staff), pharmacists, and, most importantly, patients.

Dr Demerjian_Barby IngleSee videos and learn about alternative treatment options available to you with a consultation from Dr. Demerjian

E-mail: drd@tmjconnection.com Burbank Office: (818) 238 9865 Glendora Office: (626) 852 1865 www.tmjconnection.com

TMJ disorders have been called the “Great Impostors” because many of the symptoms have overlapping characteristics, which often mimic other conditions. Indeed, it is quite common for people to seek the care of a medical doctor or medical specialist in search of a cure or answer. Most, however, never think to contact a dentist trained in TMD since the symptoms are primarily medical in nature.

Do you suffer from any of these?

• Headaches • Jaw joint clicking or popping
• Facial Pain • Neck pain or stiffness
• Jaw joint pain • Worn, loose or sensitive teeth
• Limited ability to open and close your mouth • Difficulty eating, chewing or swallowing
• Dizziness or vertigo • Pain whenever you talk or smile
• Earaches (or ear congestion) • Poor posture

  • Don’t smoke. It can worsen chronic pain.
  • Learn deep breathing or meditation to help with chronic pain.
  • Reduce stress in your life. Stress intensifies chronic pain.
  • Boost chronic pain relief with the natural endorphins from exercise.
  • Cut back on alcohol, which can worsen sleep problems.
  • Join a support group. Meet others living with chronic pain.
  • Track your pain level and activities every day.
  • Learn biofeedback to decrease pain severity.
  • Eat a healthy diet if you’re living with chronic pain.
  • Find ways to distract yourself from pain so you enjoy life more.

Pain management is an ongoing process, not just a one-time concern. Finding the right combination of therapies may take time, but often makes the critical difference in your care.

Your pain management team will work with you to map out a treatment plan tailored to your specific needs. Successful pain management aims to:

  • Lessen the pain
  • Improve functioning
  • Enhance your quality of life

These are considered the hallmarks of pain management and “best practices.”In some cases, pain is best managed using a combination of treatments. This is referred to as a “multi-modality” approach. For example, your healthcare provider may prescribe a medication along with activities to reduce stress (e.g., yoga, deep-breathing exercises). To improve daily functioning, specific therapies may be suggested to increase muscle strength and flexibility, enhance sleep and reduce fatigue, and assist you in performing usual activities and work related tasks.

Report unwanted side effects

SUPPORT PATIENT FUNDRAISERS

After years of mystery illnesses dating back to early childhood, multiple trips to various hospitals over the past 6-7 years, a fierce “head pressure” affliction in May 2012 that forced her into the hospital, and 15 additional unproductive visits with the “best doctors” in Los Angeles and Chicago, it was determined that Erica has late stage Chronic Lyme Disease with multiple co-infections. Yes, Lyme disease from a tick or other infection carrying parasite. We don’t know where or when she was bitten or even really how she acquired the disease but suspect she has had it for a very long time. On top of the Lyme infection, she has co-infections Babesia and Bartonella, which are two additional parasites attacking her immune system and vital organs. Read more Click here to visit Eica’s donation page.

Makena was a normal, active, energetic 16 year old girl.  She loved shopping, hanging out with friends, and art.  She was a successful student with plans of becoming a labor and delivery nurse.  She was actively planning her future and living life to the fullest. In February Makena’s world began to change. She started to suffer from a, rare and extremely painful, neurological disorder called Complex Regional Pain Syndrome or Reflex Sympathetic Dystrophy. The pain associated with this disease is ranked higher than child birth and amputation of a digit on the McGills Pain Index. Within a few months, Makena lost all function of her hands and legs.  She is in continual pain and can’t even tolerate a gentle touch or a hug. Visit www.helpmakena.com to make a donation.

I have had a long and hard battle with Reflex Sympathetic Dystrophy/Complex Regional Pain Syndrome since 2001. For those who have never heard of this condition, I live with intense burning pain, stiffness, swelling, and discoloration on the left side of my body. The pain is excruciating and has been described by some of my fellow peers as being worse than labor pain during childbirth. My pain scale very rarely falls below a 7 out of 10.

We appreciate any and all help and will be paying it forward in the future when we are in the position to help someone else in our position. Click here to visit Rich’s donation page.

Danielle’s life changed drastically 5 years ago after bumping her leg riding a horse and her excruciating pain started. She was diagnosed with CRPS Complex Regional Pain Syndrome (highest pain known), EDS Elders Danlos (a defect in her connective tissue) and her autonomic nervous system is not working properly so she also has Dyautonomia, Every joint and organs are affected and compromised. These conditions are rare by themselves but combined are extremely rare. She has been misunderstood and abused by the medical community because they don’t have answers for her. She suffers daily and at present is making weekly trips to ER along with extended hospitalization still necessary.

She moved away from her horses for 2 years because the horses reminded her of what she had lost and were the source of more pain. She could not physically do her work with kids in her clinics. She and her mother put their work. Drop Your Reins is on hold to focus on finding help for Danielle’s health. Click here to visit Danielle’s donation page.

donate

Power of Pain Foundation is excited to announce our fundraisers program. Each month POPF will donate $200 that will be spread evenly to 4 fundraisers. Each fundraiser selected will receive a $50 dollar donation and will be hosted on the home page www.powerofpain.org With a focus on youth, each fundraiser selected must be under the age of 21.

We understand the difficulties of raising funds. We want to spread awareness about your fundraiser. We want your story to be heard and have the chance to say thank you to those that do donate. Read someones story, make a donation and feel good about yourself at the same time. No donation is to small. A whole lot of little adds up to a gob!

If you would like to donate to this program and raise the amount that gets spread evenly please click here.

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donation certificate

 

Chronic pain is pain that has lasted for a long time. In medicine, the distinction between acute and chronic pain has traditionally been determined by an arbitrary interval of time since onset; the two most commonly used markers being 3 months and 6 months since onset, though some theorists and researchers have placed the transition from acute to chronic pain at 12 months. Others apply acute to pain that lasts less than 30 days, chronic to pain of more than six months duration, and acute pain that lasts from one to six months. A popular alternative definition of chronic pain, involving no arbitrarily fixed duration is “pain that extends beyond the expected period of healing”.

Vince’s passion is to understand the human brain. He has spent the past three decades focusing on brain research. He is the founding Director of the newly built Clinical Neuroscience Center in the Department of Psychology at the University of New Mexico (psych.unm.edu), and is an Editor for NeuroImage, the most highly cited journal in the field of neuroimaging. Vince’s most important occupation is caring for his children. His 11 year old son was diagnosed with a pain syndrome two years ago. This started him on a journey to find and validate new methods to alleviate suffering in people with brain and mental illnesses. He hopes to help begin a “small” revolution in medicine, finding more practical methods of diagnosis and treatment that are also safer, cheaper and more effective than what is currently available.

Neuroscientist and inventor Christopher deCharms demos an amazing new way to use fMRI to show brain activity while it is happening — emotion, body movement, pain. (In other words, you can literally see how you feel.) The applications for real-time fMRIs start with chronic pain control and range into the realm of science fiction, but this technology is very real.

It’s relatively easy to imagine a new medicine, a better cure for some disease. The hard part, though, is testing it, and that can delay promising new cures for years. In this well-explained talk, Geraldine Hamilton shows how her lab creates organs and body parts on a chip, simple structures with all the pieces essential to testing new medications — even custom cures for one specific person.

Not all microbes are pathogens. As Jonathan Eisen of the University of California of Davis points out, the health of our microbiome is vital to protecting us from disease.

As a young surgeon, Peter Attia felt contempt for a patient with diabetes. She was overweight, he thought, and thus responsible for the fact that she needed a foot amputation. But years later, Attia received an unpleasant medical surprise that led him to wonder: is our understanding of diabetes right? Could the precursors to diabetes cause obesity, and not the other way around? A look at how assumptions may be leading us to wage the wrong medical war.

 
rsd quilts banner

The RSD Quilt is dedicated to ALL patients and loved ones everywhere who has ever worked to spread awareness or to raise money for RSD. Doctors and Nurses, the support group leaders; all the fighters out there; this is for everyone who ever raised a hand against the monster called RSD. Most of all this is dedicated to all of those we have lost along the way who fought until they could fight no more.

Watch The Newest Quilt Come Together 1 Square At A Time

All squares sent in to be dedicated to the Quilt Project will be added to the slideshow for everybody to view. To all that participate in the quilt project, our goal is to make this a part of yours as much as it is a part of ours and we thank you all.

Visit www.rsdcrps.org or click on the banner to learn more.

paula abdul

Have you got your latest copy of PainPathways? Connect and inspire people who live with pain, both personally and professionally, offering in-depth information on new treatments, integrative therapies and current research.Visit Pain Pathways 

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great non profits

Great Nonprofits is a place to find trustworthy nonprofits. Their mission is to inspire and inform donors and volunteers, enable nonprofits to show their impact, and promote greater feedback and transparency. Please take a moment and leave a review. Your input is valuable to our cause. With your help we can continue our stride towards excellence. Thank You in advance and may you have many pain free days.

Because of the amazing reviews we got from all of you, we’ve won a 2012 Top-Rated Award from GreatNonprofits. Check out our profile! We’ll be highlighted on the 2012 Top-Rated Page. The Huffington Post, TakePart and Parade Magazine will be referring their readers to check out Top-Rated Nonprofits in November.  We also received this award in 2011. Congrats to everyone who helps make Power of Pain Foundation a success and have helped us grow over the past 6 years.

top rated non profit

GreatNonprofits, GuideStar and Charity Navigator are excited to announce the results of the 2011 Health Campaign. During June, Power of Pain Foundation qualified as a Top-Rated Health Nonprofit.

DON’T FORGET TO CHECK OUT POPF PAST EVENTS

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NERVEmber 2013

comic pain relief with joan rivers

Joan Rivers to Headline Comic Pain Relief 2013

Opening performance by Ace Young and Diana DeGarmo of American Idol fame and now cohost of Planet 360o.

Chandler Center for the Arts 250 N Arizona Ave, Chandler, AZ 85225 Friday - 7:00pm November 15, 2013 ComicPainRelief.com

chandler center for the arts
ace young and diana degarmo at comic pain relief
ryan young at comic pain relief
joan rivers at comic pain relief
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nervember balloon release

1st Annual NERVEmber RSD Balloon Launch

Spreading awareness about RSD for others to discover at Discovery Park, AZ. With hopes that everyone in our lives will discover RSD in one way or the other. Attached to the balloons is the RSD BREAK CARD explaining a little about this condition. Thank you everyone for attending and those that are with us online, you can see more photos HERE.

rsd break cards

December 2013

phoenix coyotes 50/50 raffel

Power of Pain Foundation wants to say thank you to all the volunteers who helped make the 50/50 Raffle a huge success. A special thank you to the volunteers that returned from last year. Coyotes vs Blackhawks was a sold out game and helped raise over 6k to fund youth programs for POPF.

phoenix coyotes logo
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POPF Holiday Mail program

Support a Family Fighting Pain This Holiday Season by Sending Words of Good Cheer! This year the Power of Pain Foundation is starting a new tradition… a Christmas card for the special pain patient or caregiver in your life. Do you know someone who feels like they are alone; well we want to give them a little joy and cheer. So, send us their address and we will get the joy of delivering holiday greetings to patients around the world. The cards and personal messages from you will be sent out on December 15th so they arrive just in time for Christmas. Thanks for providing a welcome “touch of love” for our pain community members during the holiday season. Each year we will also collect cards between October and early December and then distribute them through the mail, at hospitals, and in other pain management locations.

popf christmas card
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quench the fire run

GOAL Is to advance research, actively seek new and innovative treatments, and increase understanding of not only RSD/CRPS, but all neuropathic chronic pain diseases.  RSD is too often misdiagnosed, sorely misunderstood, and still unrecognized to this day.

This disease‚ the most perplexing in its category, often creates emotional, financial, and physical devastation.On the McGill Pain Index, RSD/CRPS ranks among the most agonizing, debilitating experiences a body can go through.

Proceeds Go ToSupporting research, education, and community outreach for The Pain Center at the Keck School of Medicine at USC.

There is no cure.  Someday we hope to change that.

March 2014

phoenix coyotes put pain in the penalty box
jobing .com arena
popf ad on phoenix coyotes score board

POPF putting pain in the penalty box. Making awareness about RSD and other condition’s that have never pain as a symptom. Click here to see more pictures.

lexi johnson 2Lexi Johnson is a Clinical Herbalist trained under Joanne Sanchez at Southwest Institute of Healing Arts. She is earning her title as Holistic Nutrition Specialist and is trained in life coaching and public speaking. Lexi believes that the body has the innate capability to heal itself and that optimal nutrition and herbs enable and assist the body in it’s natural functions. As an herbalist and nutritional coach, she currently works with clients as an advocate and educator of the healing power of herbs and the life giving properties of whole foods. She treats each person as a whole and delves in to all aspects of human life to find healing and establish sustained health.

popf nutrition seminar
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Educational event from a Nutritionist / Herbalist. We all learned so much from Lexi Johnson and look forward to working with Lexi in the future. Click here for more pictures.