Aunt Barby’s Invisible, Endless Owie
Sometimes, explaining chronic pain to children is difficult, especially when the cause of the pain isn’t clearly visible.
This hardcover book helps kids understand that people with chronic pain conditions often need special care, but that doesn’t mean they don’t like to have a good time. It talks about ‘Aunt Barby’ coming for a visit and how to get the house ready for a special kind of guest.
Power of Pain Foundation (POPF) provides community based support services that address needs of chronic pain patients with Neuropathy conditions such as RSD/CRPS, Post Cancer Pain, Fibromyalgia, Diabetic Neuropathy, and many more. Accordingly, beneficiaries include patients who are economically and socially affected by these invisible diseases. Whether you have Neuropathy pain or a caregiver, family member, or friend of someone diagnosed, we’ll help you face the challenges and life changes of chronic nerve pain, head on.
We are raising money for medical expenses and needs that have overwhelmed our family due to Tanner’s RSD/CRPS! Tanner was diagnosed with RSD in April of 2010. On that day his life changed forever. He endures the most painful medical condition known. A feeling of being set on fire.
He has had 30 sympathetic blocks, 13 five day epidurals, 7 ketamine infusions, 2 six week embedded catheters, PT, OT, Mental Health Therapy, takes approx 20 pills a day and has a spinal cord stimulator.
Avery is currently at UC Davis Medical center in the Pediatric ICU. On Sunday November 2nd, Avery fell unconscious at his home in Ione, and was rushed to Sutter Amador Hospital in Jackson. From there, a bleed in the left side of Avery’s brain was discovered and he was life-flighted to UC Davis, where he is currently in a medically induced coma. He is being treated for a severe brain hemorrhage, and has had a part of his skull surgically removed to alleviate pressure. Avery is an incredibly couragous, and autistic 6 year old, and has proven to be a true fighter. There are many answers his family does not have about the cause of his illness, and the full prognosis for Avery is not yet known.
Hardy was diagnosed with Cystic Fibrosis* at birth and after a surgery to repair his intestines and 16 days in the hospital Mommy was able to bring him home. He has spent the first year of his life being an amazing, inspiring little man as he is just a happy little guy despite everything this horrible disease has put him and his momma through. Hardys mom is a very hard working single mom. She eat, breaths, and dreams Hardy. Unfortuntately, Being the most hard working, dedicated mommy I know hasnt been enough. Hardy’s medication co pays and specialist visits are very expensive and although she is managing we are starting this campain because Hardy is finally big enough for a vest**. A vest is a very expensive tool used as a treatment technique for CF.
My 2 year old Daughter Elizabeth has been diagnosed with T-Cell Actute Lymphoblastic Leukemia. Her spleen & liver were extremely enlarged. She has undergone a number of bone marrow, spinal tap, and has a port line for Chemotherapy. Her white blood cell was over 360 thousand and its suppose to be 17 hundred. In the beginning they had decided to do a pick line instead of the port due to her health. Her oxygen level was low so they are kept oxygen on her, the best she would let them. The second time they admited her she was diagnosed with cellulitis on her left elbow. While in the hospital they also diagnosed with drop foot & Peripheral neuropathy in both her legs. They put her on more medication for that. This little angel has 12 medications now she takes twice daily.
- Provider Spotlight
- Hart brings Pain to Nascar
- Advocate Spotlight
- P A Shuffle
- Tips to Help Cope With Chronic Pain
- Goals of Pain Therapy
- Report Unwanted Side Effects
E-mail: firstname.lastname@example.org Burbank Office: (818) 238 9865 Glendora Office: (626) 852 1865 www.tmjconnection.com
TMJ disorders have been called the “Great Impostors” because many of the symptoms have overlapping characteristics, which often mimic other conditions. Indeed, it is quite common for people to seek the care of a medical doctor or medical specialist in search of a cure or answer. Most, however, never think to contact a dentist trained in TMD since the symptoms are primarily medical in nature.
Do you suffer from any of these?
|• Headaches||• Jaw joint clicking or popping|
|• Facial Pain||• Neck pain or stiffness|
|• Jaw joint pain||• Worn, loose or sensitive teeth|
|• Limited ability to open and close your mouth||• Difficulty eating, chewing or swallowing|
|• Dizziness or vertigo||• Pain whenever you talk or smile|
|• Earaches (or ear congestion)||• Poor posture|
Donate to help Hart bring pain awareness to future Nascar races.
“As a patient advocate and also as one who battles with an arduous health condition (Complex Regional Pain Syndrome or Reflex Sympathetic Dystrophy), I have been involved in several conversations regarding the need for a “magical pill” that eliminates all suffering
– J. S. Wilkes, POPF Executive Board Member and affliction. After much deliberation, I am confident that I have found such a pill. I present this P.I.L.L. philosophy only as a Polite Invitation for “Living” Longer. CRPS/RSD has a nasty reputation of taking a person’s life away but leaving them still breathing. By sharing this philosophy, I hope that those suffering can also apply this in their own lives, become empowered and take back control. While it may not solve everything, discovering your P.I.L.L. will help you heal and live a more fulfilling and functional lifestyle.”
The Power of Pain Foundation works to develop a standardized prior authorization form for prescription drugs, not to exceed two pages in length, and to make the form electronically available and transmissible in every state. The bill would also allow for the electronic notification of the approval or denial of the authorization request.
The Power of Pain Foundation, strongly supports legislation which will streamline the prior authorization process, benefiting physicians (and their staff), pharmacists, and, most importantly, patients.
Don’t smoke. It can worsen chronic pain.
Learn deep breathing or meditation to help with chronic pain.
Reduce stress in your life. Stress intensifies chronic pain.
Boost chronic pain relief with the natural endorphins from exercise.
Cut back on alcohol, which can worsen sleep problems.
Join a support group. Meet others living with chronic pain.
Track your pain level and activities every day.
Learn biofeedback to decrease pain severity.
Eat a healthy diet if you’re living with chronic pain.
Find ways to distract yourself from pain so you enjoy life more.
Pain management is an ongoing process, not just a one-time concern. Finding the right combination of therapies may take time, but often makes the critical difference in your care.
Your pain management team will work with you to map out a treatment plan tailored to your specific needs. Successful pain management aims to:
- Lessen the pain
- Improve functioning
- Enhance your quality of life
These are considered the hallmarks of pain management and “best practices.”In some cases, pain is best managed using a combination of treatments. This is referred to as a “multi-modality” approach. For example, your healthcare provider may prescribe a medication along with activities to reduce stress (e.g., yoga, deep-breathing exercises). To improve daily functioning, specific therapies may be suggested to increase muscle strength and flexibility, enhance sleep and reduce fatigue, and assist you in performing usual activities and work related tasks.
- Depression Recovery Center
- Body Parts on a Chip
- Small Revolution in Medicine
- Mystery of Chronic Pain
- Look Inside the Brain in Real Time
- Meet Your Microbes
- Is the obesity crisis hiding a bigger problem?
- P.A. Shuffle
- Faces of Pain 6, (Bilingual)
- Jerry Mathers (DPN) PSA
At Depression Recovery Centers, we believe in taking a holistic approach for treating depression. After our initial evaluations, our multidisciplinary team will assist you in developing a personalized plan of action for treating your depression, including: Ketamine IV Treatments, psychotherapy sessions with your personal therapist, and development of a wellness plan.
It’s relatively easy to imagine a new medicine, a better cure for some disease. The hard part, though, is testing it, and that can delay promising new cures for years. In this well-explained talk, Geraldine Hamilton shows how her lab creates organs and body parts on a chip, simple structures with all the pieces essential to testing new medications — even custom cures for one specific person.
Vince’s passion is to understand the human brain. He has spent the past three decades focusing on brain research. He is the founding Director of the newly built Clinical Neuroscience Center in the Department of Psychology at the University of New Mexico (psych.unm.edu), and is an Editor for NeuroImage, the most highly cited journal in the field of neuroimaging. Vince’s most important occupation is caring for his children. His 11 year old son was diagnosed with a pain syndrome two years ago. This started him on a journey to find and validate new methods to alleviate suffering in people with brain and mental illnesses. He hopes to help begin a “small” revolution in medicine, finding more practical methods of diagnosis and treatment that are also safer, cheaper and more effective than what is currently available.
Chronic pain is pain that has lasted for a long time. In medicine, the distinction between acute and chronic pain has traditionally been determined by an arbitrary interval of time since onset; the two most commonly used markers being 3 months and 6 months since onset, though some theorists and researchers have placed the transition from acute to chronic pain at 12 months. Others apply acute to pain that lasts less than 30 days, chronic to pain of more than six months duration, and acute pain that lasts from one to six months. A popular alternative definition of chronic pain, involving no arbitrarily fixed duration is “pain that extends beyond the expected period of healing”.
Neuroscientist and inventor Christopher deCharms demos an amazing new way to use fMRI to show brain activity while it is happening — emotion, body movement, pain. (In other words, you can literally see how you feel.) The applications for real-time fMRIs start with chronic pain control and range into the realm of science fiction, but this technology is very real.
Not all microbes are pathogens. As Jonathan Eisen of the University of California of Davis points out, the health of our microbiome is vital to protecting us from disease.
As a young surgeon, Peter Attia felt contempt for a patient with diabetes. She was overweight, he thought, and thus responsible for the fact that she needed a foot amputation. But years later, Attia received an unpleasant medical surprise that led him to wonder: is our understanding of diabetes right? Could the precursors to diabetes cause obesity, and not the other way around? A look at how assumptions may be leading us to wage the wrong medical war.
Special thanks to Executive Board Member Twinkle VanFleet. Twinkle has dedicated her time to making this video bilingual. Making a difference together helps us all.
The RSD Quilt is dedicated to ALL patients and loved ones everywhere who has ever worked to spread awareness or to raise money for RSD. Doctors and Nurses, the support group leaders; all the fighters out there; this is for everyone who ever raised a hand against the monster called RSD. Most of all this is dedicated to all of those we have lost along the way who fought until they could fight no more.
Because of the amazing reviews we got from all of you, we’ve won another Top-Rated Award from GreatNonprofits. Check out our profile! We’ll be highlighted on the Top-Rated Page. The Huffington Post, TakePart and Parade Magazine will be referring their readers to check out Top-Rated Nonprofits in November. We also received this award in 2010, 2011, 2012, 2013 and now 2014. Congrats to everyone who helps make Power of Pain Foundation a success and have helped us grow over the past 7 years.