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Power of Pain Foundation (POPF) provides community based support services that address needs of chronic pain patients with Neuropathy conditions such as RSD/CRPS, Post Cancer Pain, Fibromyalgia, Diabetic Neuropathy, and many more. Accordingly, beneficiaries include patients who are economically and socially affected by these invisible diseases. Whether you have Neuropathy pain or a caregiver, family member, or friend of someone diagnosed, we’ll help you face the challenges and life changes of chronic nerve pain, head on.

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News Letter

Over 150 conditions have neuropathy as a symptom. Pain can affect emotional outlook, your ability to concentrate, your energy level and sense of self. Click on the conditions button to find out more.

 
 
 
 
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Gracie,(11) is battling a terrible chronic pain disorder called Complex Regional Pain Syndrome (aka RSD). This illness is not well known & the medical field doesn’t understand it very well either. Although it isn’t life threatening, it can be completely debilitating. Gracie was originally diagnosed when she was 9 years old & now at 11, she is in the middle of her third flare up. Since 2012, she has had more months with pain than without. She has missed numerous days of school because the pain is overwhelming & prevents her from walking.

Read more and visit Gracie’s fundraiser.

We were given the news that the tumor they removed is cancerous. It is called Medulloblastoma. This type of tumor starts in the region of the brain, and tends to spread to other parts of the brain and spinal cord. There are a few tumors on Kapri’s spinal cord, but they are very small and surgery is not needed, as Dr’s are confident they can be treated with radiation.  

Kapri will stay in the hospital until she recovers from her surgery, which will be sometime next week. She will remain at home for about 3 weeks so she can fully recover, and then begin radiation treatment five days a week at UCSF.

Read more and visit Kapri’s fundraiser.

Megan Manuel has been diagnosed with RSD,EDS, POTS, hypermobility syndrome, juvenile fibromyalgia, and peripheral neuropathy.  All of these together cause great pain in her body.  All of this began for her in Sept 2008.  It has taken nearly 5 years for her to be diagnosed.  She is 15 years old.  Megan has a chance to get a spinal cord stimulator, this may very well be the first and only chance to get some relief of her pain.

Read more and visit Megan’s fundraiser.

Tori is 15 years old and has a nerve disease called rsd. this is a highly painful disease with no known cure. what has happened is due to an injury at some point in time or the other and during the healing process something went wrong and her brain continues to send a constant pain signal even though the injury has healed. this causes narrowing of the blood vessels causing extreme pain as well as her leg will get extremely cold and turn purple or blue. sometimes it’s bright pink or red with white spots. the pain from rsd rates higher than that of giving birth naturally. we have found a treatment that is having great success and doesn’t require needles or surgery of any kind however insurance typically doesn’t cover it hence the reason for the fund raiser. the nearest location is 6.5 hours away and will require her to have 10 sessions within 2 weeks. 

Visit Tori’s Fundraising page and read more.

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If you have already been selected to be a part of the fundraiser program and would like to be Trudy’s guest on Living With Hope radio show, please complete this form.

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Donate to help Hart bring pain awareness to future Nascar races.

PILL MAN“As a patient advocate and also as one who battles with an arduous health condition (Complex Regional Pain Syndrome or Reflex Sympathetic Dystrophy), I have been involved in several conversations regarding the need for a  “magical pill” that eliminates all suffering

 – J. S. Wilkes, POPF Executive Board Member and affliction. After much deliberation, I am confident that I have found such a pill. I present this P.I.L.L. philosophy only as a Polite Invitation for “Living” Longer. CRPS/RSD has a nasty reputation of taking a person’s life away but leaving them still breathing. By sharing this philosophy, I hope that those suffering can also apply this in their own lives, become empowered and take back control. While it may not solve everything, discovering your P.I.L.L. will help you heal and live a more fulfilling and functional lifestyle.”

Jason Wilkes

Dr Demerjian_Barby IngleSee videos and learn about alternative treatment options available to you with a consultation from Dr. Demerjian

E-mail: drd@tmjconnection.com Burbank Office: (818) 238 9865 Glendora Office: (626) 852 1865 www.tmjconnection.com

TMJ disorders have been called the “Great Impostors” because many of the symptoms have overlapping characteristics, which often mimic other conditions. Indeed, it is quite common for people to seek the care of a medical doctor or medical specialist in search of a cure or answer. Most, however, never think to contact a dentist trained in TMD since the symptoms are primarily medical in nature.

Do you suffer from any of these?

• Headaches • Jaw joint clicking or popping
• Facial Pain • Neck pain or stiffness
• Jaw joint pain • Worn, loose or sensitive teeth
• Limited ability to open and close your mouth • Difficulty eating, chewing or swallowing
• Dizziness or vertigo • Pain whenever you talk or smile
• Earaches (or ear congestion) • Poor posture

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Prior Authorization

The Power of Pain Foundation works to develop a standardized prior authorization form for prescription drugs, not to exceed two pages in length, and to make the form electronically available and transmissible in every state. The bill would also allow for the electronic notification of the approval or denial of the authorization request.

The Power of Pain Foundation, strongly supports legislation which will streamline the prior authorization process, benefiting physicians (and their staff), pharmacists, and, most importantly, patients.

  • Don’t smoke. It can worsen chronic pain.
  • Learn deep breathing or meditation to help with chronic pain.
  • Reduce stress in your life. Stress intensifies chronic pain.
  • Boost chronic pain relief with the natural endorphins from exercise.
  • Cut back on alcohol, which can worsen sleep problems.
  • Join a support group. Meet others living with chronic pain.
  • Track your pain level and activities every day.
  • Learn biofeedback to decrease pain severity.
  • Eat a healthy diet if you’re living with chronic pain.
  • Find ways to distract yourself from pain so you enjoy life more.

Pain management is an ongoing process, not just a one-time concern. Finding the right combination of therapies may take time, but often makes the critical difference in your care.

Your pain management team will work with you to map out a treatment plan tailored to your specific needs. Successful pain management aims to:

  • Lessen the pain
  • Improve functioning
  • Enhance your quality of life

These are considered the hallmarks of pain management and “best practices.”In some cases, pain is best managed using a combination of treatments. This is referred to as a “multi-modality” approach. For example, your healthcare provider may prescribe a medication along with activities to reduce stress (e.g., yoga, deep-breathing exercises). To improve daily functioning, specific therapies may be suggested to increase muscle strength and flexibility, enhance sleep and reduce fatigue, and assist you in performing usual activities and work related tasks.

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At Depression Recovery Centers, we believe in taking a holistic approach for treating depression. After our initial evaluations, our multidisciplinary team will assist you in developing a personalized plan of action for treating your depression, including: Ketamine IV Treatments, psychotherapy sessions with your personal therapist, and development of a wellness plan.

It’s relatively easy to imagine a new medicine, a better cure for some disease. The hard part, though, is testing it, and that can delay promising new cures for years. In this well-explained talk, Geraldine Hamilton shows how her lab creates organs and body parts on a chip, simple structures with all the pieces essential to testing new medications — even custom cures for one specific person.

Vince’s passion is to understand the human brain. He has spent the past three decades focusing on brain research. He is the founding Director of the newly built Clinical Neuroscience Center in the Department of Psychology at the University of New Mexico (psych.unm.edu), and is an Editor for NeuroImage, the most highly cited journal in the field of neuroimaging. Vince’s most important occupation is caring for his children. His 11 year old son was diagnosed with a pain syndrome two years ago. This started him on a journey to find and validate new methods to alleviate suffering in people with brain and mental illnesses. He hopes to help begin a “small” revolution in medicine, finding more practical methods of diagnosis and treatment that are also safer, cheaper and more effective than what is currently available.

Chronic pain is pain that has lasted for a long time. In medicine, the distinction between acute and chronic pain has traditionally been determined by an arbitrary interval of time since onset; the two most commonly used markers being 3 months and 6 months since onset, though some theorists and researchers have placed the transition from acute to chronic pain at 12 months. Others apply acute to pain that lasts less than 30 days, chronic to pain of more than six months duration, and acute pain that lasts from one to six months. A popular alternative definition of chronic pain, involving no arbitrarily fixed duration is “pain that extends beyond the expected period of healing”.

Neuroscientist and inventor Christopher deCharms demos an amazing new way to use fMRI to show brain activity while it is happening — emotion, body movement, pain. (In other words, you can literally see how you feel.) The applications for real-time fMRIs start with chronic pain control and range into the realm of science fiction, but this technology is very real.

Not all microbes are pathogens. As Jonathan Eisen of the University of California of Davis points out, the health of our microbiome is vital to protecting us from disease.

As a young surgeon, Peter Attia felt contempt for a patient with diabetes. She was overweight, he thought, and thus responsible for the fact that she needed a foot amputation. But years later, Attia received an unpleasant medical surprise that led him to wonder: is our understanding of diabetes right? Could the precursors to diabetes cause obesity, and not the other way around? A look at how assumptions may be leading us to wage the wrong medical war.

Special thanks to Executive Board Member Twinkle VanFleet. Twinkle has dedicated her time to making this video bilingual. Making a difference together helps us all.

 
 
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The RSD Quilt is dedicated to ALL patients and loved ones everywhere who has ever worked to spread awareness or to raise money for RSD. Doctors and Nurses, the support group leaders; all the fighters out there; this is for everyone who ever raised a hand against the monster called RSD. Most of all this is dedicated to all of those we have lost along the way who fought until they could fight no more.

Watch The Newest Quilt Come Together 1 Square At A Time

 
WHY and HOW?      There is a ton of talk about smoothies and plenty more talk about juicing.  What are the benefits of each food preparation?  They truly do differ in the value they have for our health and both are very beneficial in …
 
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Because of the amazing reviews we got from all of you, we’ve won another Top-Rated Award from GreatNonprofits. Check out our profile! We’ll be highlighted on the Top-Rated Page. The Huffington Post, TakePart and Parade Magazine will be referring their readers to check out Top-Rated Nonprofits in November.  We also received this award in 2010,  2011, 2012, 2013 and now 2014. Congrats to everyone who helps make Power of Pain Foundation a success and have helped us grow over the past 7 years.